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Aspect of evaluation
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Study design
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Workstream 1: What is specialist care?
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Identify the competence of healthcare professionals delivering care to TYA
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International e-Delphi study [31]
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Describe the culture of TYA cancer care and define ‘age-appropriate care’
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Multi-case study across 4 networks of care (involving 24 NHS Trusts in England) [21]
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Develop a measure quantifying access to specialist TYA cancer care
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Analysis of NHS HES Admitted Patient Care data
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Workstream 2: Does specialist care make a difference
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Determine the outcomes associated with TYA cancer care
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Longitudinal cohort study using a bespoke survey [23] administered 5 times over 3 years from 6 months after diagnosis
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Determine carers experience of TYA cancer care
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Unmet needs questionnaire administered to young people’s main carer nominated at wave 1
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Workstream 3: How much does specialist care cost?
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Calculate the cost of TYA cancer care
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Young person administered health economics questionnaires for out of pocket costs, analysis of clinical and HES data
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- HES Hospital Episode Statistics, NHS National Health Service, TYA teenage and young adult
