Table 3 Summary of data from telephone interviews
From: Involving elderly research participants in the co-design of a future multi-generational cohort study
| Questions (closed) | Results | % (number) |
|---|---|---|
| 1. Do you think participants like yourself should be involved in helping design research projects, or just researchers? | Just researchers | 39 (11/28) |
| Participants involved | 46 (13/28) | |
| Unsure | 14 (4/28) | |
| 2. Would you be willing to provide feedback and share your views and perspectives by commenting throughout the research process? | Yes | 100 (32/32) |
| No | 0 (0/32) | |
| 3. Would you like to be more involved in study design rather than just participating? | Yes | 65 (11/17) |
| No | 12 (2/17) | |
| Unsure | 23 (4/17) | |
| 4. Would you be more or less likely to participate in research if participants were involved in design | More likely | 25 (2/8) |
| Less likely | 0 (0/8) | |
| Unsure | 13 (1/8) | |
| Wouldn’t influence participation | 13 (1/8) | |
| 5. What is your preferred mode of communication for being involved | Face to face event | 25 (15/59) |
| Post | 31 (18/59) | |
| Online discussion | 8 (5/59) | |
| Online questionnaire | 17 (10/59) | |
| 6. If genetic research results were made available, which types of genetic testing would you be interested in? a | Medical | 97 (32/33) |
| Ancestry | 97 (32/33) | |
| Drug response | 94 (31/33) | |
| 7. If only one option for genetic testing was available, which one would you prefer? | Medical | 65 (11/17) |
| Ancestry | 12 (2/17) | |
| Drug response | 6 (1/17) | |
| No preference | 18 (3/17) |