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Table 3 Perception of how anonymised health data is currently used. Respondents were asked whether they believed that their health data was currently used for the seven purposes outlined

From: Perceptions of anonymised data use and awareness of the NHS data opt-out amongst patients, carers and healthcare staff

  Own healthcare Organising services within the hospital Projects which improve NHS services Research by NHS staff Research by university researchers Research by drug companies or medical technology companies Research by companies who do not provide healthcare products or services
Yes No Unsure Yes No Unsure Yes No Unsure Yes No Unsure Yes No Unsure Yes No Unsure Yes No Unsure
Age (years)
 12–17 100% 0.0% 0.0% 54.2% 18.6% 27.1% 47.5% 33.9% 18.6% 57.6% 32.2% 10.2% 33.9% 47.5% 18.6% 25.4% 47.5% 27.1% 8.5% 66.1% 25.4%
 18–24 100% 0.0% 0.0% 64.7% 5.9% 29.4% 52.9% 29.4% 17.6% 70.6% 17.6% 11.8% 47.1% 41.2% 11.8% 29.4% 58.8% 11.8% 23.5% 64.7% 11.8%
 25–34 94.3% 3.8% 1.89% 80.8% 11.5% 7.7% 83.0% 9.4% 7.5% 73.6% 13.2% 13.2% 26.9% 46.2% 26.9% 25.0% 53.8% 21.2% 11.5% 61.5% 26.9%
 35–44 94.6% 2.7% 2.7% 67.6% 5.4% 27.0% 54.1% 8.1% 37.8% 48.6% 21.6% 29.7% 18.9% 51.4% 29.7% 21.6% 56.8% 21.6% 10.8% 73.0% 16.2%
 45–54 87.2% 2.6% 10.3% 73.7% 10.5% 15.8% 68.4% 10.5% 21.1% 60.5% 13.2% 26.3% 34.2% 31.6% 34.2% 26.3% 31.6% 42.1% 23.7% 52.6% 23.7%
 55–64 95.1% 0.0% 4.9% 75.0% 7.5% 17.5% 47.5% 20.0% 32.5% 57.5% 27.5% 15.0% 35.0% 40.0% 25.0% 22.5% 55.0% 22.5% 10.0% 75.0% 15.0%
 65–74 100% 0.0% 0.0% 80.0% 12.5% 7.5% 62.5% 25.0% 12.5% 43.6% 43.6% 12.8% 23.1% 64.1% 12.8% 12.8% 71.8% 15.4% 10.3% 87.2% 2.6%
 75–84 100% 0.0% 0.0% 73.3% 0.0% 26.7% 66.7% 20.0% 13.3% 53.3% 33.3% 13.3% 35.7% 42.9% 21.4% 40.0% 40.0% 20.0% 14.3% 71.4% 14.3%
 85+ 100% 0.0% 0.0% 80.0% 0.0% 20.0% 40.0% 20.0% 40.0% 40.0% 40.0% 20.0% 20.0% 80.0% 0.0% 20.0% 80.0% 0.0% 25.0% 75.0% 0.0%
Gender
 Male 96.7% 1.7% 1.7% 74.8% 10.9% 14.3% 63.0% 22.7% 14.3% 61.9% 22.0% 16.1% 34.7% 48.3% 16.9% 25.4% 54.2% 20.3% 16.1% 66.9% 16.9%
 Female 96.1% 1.1% 2.8% 67.9% 10.7% 21.4% 59.2% 17.9% 22.9% 56.4% 27.9% 15.6% 27.7% 46.3% 26.0% 22.5% 52.2% 25.3% 10.7% 71.2% 18.1%
Ethnicity
 White 96.3% 1.4% 2.3% 69.6% 10.3% 20.1% 59.1% 20.0% 20.9% 60.3% 22.0% 17.8% 30.5% 44.1% 25.4% 24.4% 49.3% 26.3% 12.7% 67.9% 19.3%
 Asian/ Asian British 95.6% 0.0% 4.4% 75.6% 8.9% 15.6% 57.8% 17.8% 24.4% 51.1% 28.9% 20.0% 24.4% 55.6% 20.0% 20.0% 60.0% 20.0% 15.6% 68.9% 15.6%
 Black/ African/Caribbean/ Black British 95.8% 0.00% 4.2% 66.7% 16.7% 16.7% 66.7% 20.8% 12.5% 62.5% 33.3% 4.2% 39.1% 52.2% 8.7% 33.3% 58.3% 8.3% 13.0% 69.6% 17.4%
 Mixed/ multiple ethnic groups 100.0% 0.00% 0.0% 70.0% 10.0% 20.0% 50.0% 20.0% 30.0% 20.0% 70.0% 10.0% 10.0% 70.0% 20.0% 10.0% 70.0% 20.0% 0.0% 90.0% 10.0%
 Other 88.9% 11.1% 0.0% 88.9% 11.1% 0.0% 88.9% 11.1% 0.0% 66.7% 22.2% 11.1% 44.4% 33.3% 22.2% 22.2% 55.6% 22.2% 22.2% 55.6% 22.2%
Participant group
 Patient 100.0% 0.0% 0.0% 77.9% 4.4% 17.6% 57.4% 16.2% 26.5% 48.5% 30.9% 20.6% 30.9% 50.0% 19.1% 23.5% 61.8% 14.7% 14.7% 80.9% 4.4%
 Patient carer 96.2% 0.0% 3.8% 76.9% 15.4% 7.7% 46.2% 30.8% 23.1% 42.3% 46.2% 11.5% 30.8% 57.7% 11.5% 19.2% 57.7% 23.1% 16.0% 68.0% 16.0%
 Visiting someone 93.3% 0.0% 6.7% 66.7% 13.3% 20.0% 60.0% 6.7% 33.3% 60.0% 13.3% 26.7% 26.7% 33.3% 40.0% 26.7% 40.0% 33.3% 0.0% 80.0% 20.0%
 NHS Staff 94.0% 2.4% 3.6% 78.0% 11.0% 11.0% 77.1% 12.0% 10.8% 73.5% 18.1% 8.4% 30.5% 48.8% 20.7% 20.7% 57.3% 22.0% 11.0% 69.5% 19.5%
 NHS Volunteer 92.3% 0.0% 7.7% 92.3% 7.7% 0.0% 92.3% 7.7% 0.0% 91.7% 8.3% 0.0% 45.5% 36.4% 18.2% 50.0% 33.3% 16.7% 45.5% 45.5% 9.1%
 Public member 93.3% 3.3% 3.3% 56.7% 6.7% 36.7% 43.3% 20.0% 36.7% 40.0% 20.0% 40.0% 16.7% 43.3% 40.0% 16.7% 50.0% 33.3% 13.3% 60.0% 26.7%
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